Speaking

Need a speaker who can talk about overcoming adversity without the usual sappiness or over-the-top sentimentality? I bring real talk with a side of humor, sharing my struggles and the “you’ll never believe this one” stories.

I’ve spoken at events like the UMass Chan Duchenne Program's 5th Anniversary and Solid Biosciences' World Duchenne Awareness Day, where I’ve shared what it’s really like navigating the healthcare system as a rare disease patient.

Whether it’s talking about clinical trials, healthcare systems, or overcoming the curveballs life throws at me, I’ve got you covered.

Topics:

  • Navigating the healthcare system as a rare disease patient and gaining firsthand experience in corporate pharmaceutical PR.

  • The patient’s perspective: my clinical trial experience

Previous Speaking and Writing Engagements:

  • Keynote speaker: The Duchenne Program at UMass Chan Medical School’s 5th Anniversary

  • Panelist: SOLID Biosciences World Duchenne Awareness Day event